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“Our mission is to improve the health and well being of those affected by Alpha-1 through support to patients,
educating healthcare professionals and advancing public policy for the Alpha-1 Community.”

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    Testing for AAT Deficiency
    Simply click HERE
    Alpha One International Registry
    provides AAT Deficiency Testing. This AAT Deficiency Testing is a
    COMPLETE CONFIDENCIAL TESTING SERVICE
    and WITHOUT COST TO YOU.
    Please read the detail at: AAT Deficiency Detection Center
    On-Going Alpha-1 Lung Research


    Research Follow-up
    on Newborn Screening in Sweden


    This follow up report on newborn screening offers parents some firm supporting evidence to emphasize the importance of not smoking to their Alpha effected children (or any child). The original screening took place from 1972-1974 and involved 129 Alpha deficient children. This report comes from Thorax.
    http://thorax.bmjjournals.com/cgi/content/full/57/8/705



    American Lung Association

    The American Lung Association offers information about Alpha-1 emphysema on their web site. In addition, one can find out about their activities to prevent teen smoking, limiting environmental pollution, services to the community through smoking cessation, occupational hazards to the breathing-challenged individual and life style changes that promote healthier living with lung disease.
    http://www.lungusa.org/diseases/luna1ad.html



    Clinical Research Centers

    The following link will take you to US clinical research centers who are specializing in gastroenterology and/or the study of Alpha 1 Antitrypsin Deficiency. They may not be currently conducting research on Alpha-1, but are listed as centers who have listed themselves as conducting studies on it. Each center provides a list of studies they are/have been active. Browse through those centers near you and find one that may be on-going in your neck of the woods.
    http://www.centerwatch.com/professional/procat5.html

    Lking for More Information... Need Help Now! Click Here

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    Alpha-1 Advocacy Alliance, PO Box 202, 103 Rapidan Church Lane, Wolftown, VA 22748
    Telephone: 540-948-6777 or 1-866-FOR-A1AA   (1-866-367-2122) Fax # 540-948-6763

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