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“Our mission is to improve the health and well being of those affected by Alpha-1 through support to patients,
educating healthcare professionals and advancing public policy for the Alpha-1 Community.”

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What is Alpha-1
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  • Support
  • Medicine Support
  • Personal Advocacy
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  • Public Policy
  • Alpha-1 Vets
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    Alpha-1 Advocacy Summary

    Our Partner's
    in the Alpha
    Community



    Testing for AAT Deficiency
    Simply click HERE
    Alpha One International Registry
    provides AAT Deficiency Testing. This AAT Deficiency Testing is a
    COMPLETE CONFIDENCIAL TESTING SERVICE
    and WITHOUT COST TO YOU.
    Please read the detail at: AAT Deficiency Detection Center
    Support

    Support is often the first thing newly diagnosed patients must empower themselves with. This connection with others who have experienced this life changing adjustment is one of both emotional and technical importance in the success of the patient. As an individual, they need personal mentoring, group support through fellow patients and Internet relationships, as well as factual knowledge to face the challenges, which may lie ahead. Specialized assistance as the patient's condition and situation adjust to illness, life-style changes and physical adjustments, approach to transplant and medicinal treatments available through therapeutics and clinical trials, family issues and the especially difficult area of illness in children are main areas of focus for this support system.



    Online "Group Therapy" for the Alpha-1 Patient and Families
  • "Ask Pat" A1AA program for the Alpha-1 Patient and Family.

  • “Transplant Part V - - Fundraising”
  • “The Organ Matching Process”
  • “The National Waiting List”
  • “The Transplant Experience”
  • "Emotions during the Holiday Season"
  • "When Saying “NO”. (Nov 7, 2007)"
  • "The Wait"
  • "Considering a Transplant. (June 6, 2007)"
  • "Marital Relationships Dynamics Pre and Post Transplant."
  • "Caregivers -- How to constantly deal with the illness of a loved one."
  • "Addiction to Food, Tobacco and other Drugs of Abuse - Pre & Post Transplant"
  • "Dealing with the Denial Of Family and Friends."
  • "Denial"
  • "Depression"
  • "Anxiety and Managing Stress"
  • "Panic Attacks"
  • Pat Slavin, LCSW biography



    "Educational Scholarship Grant "
    "Educational Scholarship Grant " The Alpha-1 Advocacy Alliance announce the availability of a new dedicated scholarship in honor of our Alphas lost. This bequest is now further recognized by going directly into the Alpha Memorial Educational Award. The Alpha-1 Advocacy Alliance will offer at least one $500.00 grant each year for secondary educations (college or graduate studies) to an Alpha-1 individual who fulfills the requirements of the grant.


    Coram and A1AA ..."The Phone Card Program"
  • "The Phone Card Program..."


    "Our Bundle of Joy !! "
    Alphapotamus - "Loveable, Huggable and Wearing only his special shirt"
    For an Alpha child who is hospitalized for any reason.


    Support Information:
  • Going on Disability ?
  • Want to Talk with Others Like Yourself?
  • Flu and You ! Symptoms...Contact your medical professional, NOW !


    Directives, Living Wills, Power of Attorney
    Advance Directives, Living Wills, Power of Attorney….What's it all Mean?


    Medicare - Medicaid
  • Medicare -- Medicaid -- Other State Assistance Programs:
  • What Do I Qualify For?
  • Help with Medicaid Benefits? (Kaiser Family Foundation)
  • "FYI- The New Medicare Prescription Program"




    Medicine Support ...


    Medicines - Resources
  • Your Medical Information List
  • WalMart Drug List and Patricipating States
  • Meds under the "Together Rx Card" Program
  • The RX Outreach program: "Help With Generics Program"
  • Together Rx Access
  • Rx Hope - Medicine Assistance



    P S I, Inc.
    "P S I, Inc. -- Medicine Assistance with Transplant Anti-rejection drugs"



    Merck & Company , Inc.
    Patient Assistance for Zetia (cholesterol lowering drug)

    Fosamax

    Merck's patient assistance program covers this. The income guidelines are actually higher than listed at this web site so be sure and call if you have questions, download the form and send it on to your doctor for verification. Call us if you need help.

    http://www.needymeds.com/programs/merck.html


    Pfizer : offers a plan for seniors and Medicare beneficiaries that discounts all of their drugs to $15.00 per prescription, 30 day supply. You can apply by calling or email.
    800-717-6005 or www.pfizerforliving.com/sharecard


    Lilly : Seniors and disabled people on Medicare with individual income under $18,000 and no other drug coverage may get help from Eli Lilly. If you qualify for the LillyAnswers card, you'll pay $12.00 for a 30 day supply of SELECT Lilly medicines. Contact them at 877-795-4559 (877-RX LILLY) or www.lillyanswers.com

    A list of covered meds follows:
    These Lilly drugs are included in the LillyAnswers program:1,2

  • Ceclor® (cefaclor)
  • Cymbalta® (duloxetine HCI)
  • Evista® (raloxifene hydrochloride)
  • Glucagon for Injection (rDNA origin)
  • Humalog® (insulin lispro injection [rDNA origin])
  • Humulin® (human insulin [rDNA origin])
  • Humalog® Mix75/25™ (75% insulin lispro protamine suspension and 25% insulin
  • lispro injection [rDNA origin])
  • Iletin® (insulin injection, purified pork)
  • Prozac® (fluoxetine hydrochloride)
  • Prozac® Weekly™ (fluoxetine hydrochloride)
  • Quinidine Gluconate Injection
  • Seromycin® (cycloserine)
  • Strattera™ (atomoxetine hydrochloride)
  • Symbyax™ (olanzapine and fluoxetine HCI)2
  • Zyprexa® (olanzapine)

    All programs are subject to change at any time.


    Glaxo Smith Kline : offers a discount card called the Orange Card. This is open to singles with incomes less than $26,000 and $35,000 for couples, and of course on Medicare and no prescription coverage. Contact them at 888-672-6436.


    Novartis : has a similar program on their meds. Their income limits are $28,000 for singles and $38,000 for couples. Those with incomes less than $18,000 pay an annual fee of $12.00 while those with higher incomes receive discounts that vary. Contact them at 866-974-2273 or www.novartis.com/downloads/carecard/care_applic.pdf


    Just tell us what you need! 1-866-FOR-A1AA.

    Lking for More Information... Need Help Now! Click Here
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    Alpha-1 Advocacy Alliance, PO Box 202, 103 Rapidan Church Lane, Wolftown, VA 22748
    Telephone: 540-948-6777 or 1-866-FOR-A1AA   (1-866-367-2122) Fax # 540-948-6763

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