Our Partner's
in the Alpha
Community
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Testing for AAT Deficiency
Simply click HERE
Alpha One International Registry
provides AAT Deficiency Testing. This AAT Deficiency Testing is a
COMPLETE ALPHA-1 TESTING SERVICE
and WITHOUT COST TO YOU.
Please read the detail at: AAT Deficiency Detection Center
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Alpha-1 Advocacy Alliance
The Alpha-1 Advocacy Alliance formed to build an educational assistance program to meet these quickly expanding needs. We have a passion to serve the under-served populace, educating and empowering them to move in a direction that improves their lives. In addition, these same individuals have much to offer each other and through extended volunteers and compassion, we encourage growth through exchange.
The medical world has introduced the Alpha-1 patient to therapies to help improve the function ability of individuals. A1AA recognizes the need for patients to receive the best possible compassionate care in the administration of any medical needs. The personal needs of the Alpha 1 patient must never be forgotten and we at A1AA, are patient advocates who believe patients deserve choices. The choices can mean the difference between the emotional well-being and the physical draining of one's energy and health.
Our information network through Alpha-1 Advocacy Alliance will offer high quality response, respected professionalism, accuracy and timely updates, all while reflecting our personal commitment to provide services at no charge. Our accessibility through telephone service, Internet access and mailings should prove to touch the lives of anyone who needs help. Future conventions that bring the corners of the world together provide an ultimate goal but are not often recommended or accessible for most patients.
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Alpha-1 Advocacy Alliance
Information and News!
Appointment of Interim Executive Director
Wolftown Va. -- The Alpha-1 Advocacy Alliance has appointed Tina M. Barber M.S. Ed. as its' Interim Executive Director. Ms. Barber has extensive experience in non-profit management and has long advocated for individuals and families affected by chronic illness.
Among other responsibilities, Ms. Barber will be facilitating the organizations' three-year strategic planning process and will be conducting a comprehensive need assessment of our Alpha community. She will also be writing grants in order to expand the Alliances' capacity to serve those affected by Alpha-1.
Ms. Barber, her husband John Barry and their two daughters Gemma and Norah live in Upstate New York. Ms. Barber can be contacted exec.director@alpha1advocacy.org and looks forward to hearing from the Alpha community.
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The Alpha-1 Advocacy Alliance is proud to announce the
“Free Group Therapy Monthly Presentations”
Wednesday: July 1st, 2009 -- 7:00 pm Eastern time.
Ask Pat presentation this week:
Long Term Recovery Issues
Come listen and participate in a discussion
“ASK PAT” -- Pat Slavin, LCSW and a veteran Alpha-1 patient herself, will host this free group therapy monthly presentation every first Wednesday of the month. She’s the expert so take this opportunity to get the answers! NEW Conference Call TELEPHONE NUMBER. Simply call the toll free number 1-888-246-1819
and punch in the code 0397510254
to listen in on the call. Pat’s presentation includes time to ask questions.
other presentations at Support
Dealing with Setbacks Emotional and Physical (part 1)
Dealing with Setbacks Emotional and Physical (part 2) | |
“Re-transplantation study of lung transplantation?
Objective: This study was undertaken to evaluate outcomes of redo lung transplantation (LT) for acute and chronic graft failure. Methods: Between 1988 and 2007, 388 LT procedures were performed on 369 patients. |
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The UnitedHealthcare Children's Foundation is offering support to meet the needs of children across the United States with assistance grants for medical services not fully covered by health insurance. Parents and caretakers across the country will be eligible to apply for grants of up to $5,000 for healthcare services that will help improve their children's health and quality of life. Personal Advocacy for full story
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New Rules for Medicare Oxygen Payment Take Effect Starting January; new rules for Medicare oxygen payment took effect. Under previous law, Medicare paid oxygen suppliers a monthly rental fee for the duration of beneficiary use of home oxygen equipment. Now Medicare reimbursements are limited to the first 36 months of rental payment. During this initial time period, Medicare beneficiaries will be responsible for a 20 percent co-pay. Full Text ...
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NIH LAUNCHES NEW WEB SITE
FOR PARENTS ON MEDICAL RESEARCH STUDIES FOR CHILDREN
Award-winning video clips feature children, parents discussing clinical studies
From asthma and cancer treatments to vaccines, research in children saves lives and improves their health and well-being. A new Web site from the
National Institutes of Health (NIH), "Children and Clinical Studies" < www.ChildrenAndClinicalStudies.nhlbi.nih.gov >, offers parents and health care providers an insider's guide to children's medical research. The Web site combines information about how clinical studies in youth are conducted with award-winning video of children, parents, and healthcare providers
discussing the rewards and challenges of participating in research. Full Text ...
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Finding an Article using OJOSE. Online JOurnal Search Engine (OJOSE) is a free powerful scientific search engine enabling you to make search-queries in different databases by using only one search field. |
Support Alpha-1 Advocacy Alliance
It’s simple! It’s easy! Online shopping is fun and now, it can help Alpha-1
Advocacy Alliance. Simply sign up at www.igive.com and list A1AA as your target charity. Each time you purchase from a participating store, that store will
donate up to 10%  in your name to the Alpha-1 Advocacy Alliance. And, now ,when you sign up, they are offering an extra $5.00 donation. So, sign up today and help us help our fellow Alphas through the work of the Alpha-1 Advocacy Alliance.
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Panniculitis...Alpha1 Antitrypsin Deficiency ... Nodular panniculitis refers to inflammatory nodules in the subcutaneous fat. Nodules may be, single or multiple, localized or generalized, and vary in size from a few millimeters to several centimeters in diameter. They are generally firm, red and tender... full story
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A1AA Shoppe is now open online!
Check out the A1AA T-Shirts, iGive.com, Alphapotamus, renew and order new magazine subscriptions on line. Help raise money for the Alpha-1 Advocacy Alliance. Support the Alpha-1 Advocacy Alliance. Help us help our fellow Alphas through the work of the Alpha-1 Advocacy Alliance!
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...Alpha-1 Advocacy Alliance
“News Room”
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The Phone Card Program to assist Alpha-1 Patients ( Personal Advocacy: “The Phone Card Program” ) The Alpha-1 Advocacy Alliance and Coram Healthcare are pleased to announce “Call Home on Us.” This new Personal Advocacy Program provides phone support for those needing a little bit of help when they are away from home. For complete details click on the link above. |
FOR INFO CALL: 540-948-6777 or
Toll Free 1-866-FOR-A1AA (1-866-367-2122)
Fax # 540-948-6763
Search our web site!
Insert your “key words,” then click the “Google Search” button.
Alpha-1 Advocacy Alliance
PO Box 202, 103 Rapidan Church Lane Wolftown, VA 22748
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